One of mine had this and was also diagnosed at the age of 7yrs. He was treated with various medications, which made a tremendous difference to his state of health. He had monthly check ups to make sure that he was ok and only had further heart scans if things seemed to be getting worse. Each time this happened, his medication was altered slightly and he improved again. Once diagnosed and on the medication he was once more able to live life to the full. His quality of life improved greatly and he lived to be 14 yrs old.